International SMA Patient Registry

Study Identifier:
0202-03
ClinicalTrials.gov Identifier:
NCT00466349
EudraCT Identifier:
N/A
EU CT Number:
N/A
Sponsor:
Indiana University
Study Complete

Study Details

Medical Condition
  • All Spinal Muscular Atrophies
Study Drug
    Date
    May 1986 - Jan 2018
    Patient Requirements
    Sex: Female & Male
    Age: N/A
    Requirements Information
    Inclusion and Exclusion Criteria
    Inclusion Criteria
    • Inclusion Criteria:
    • Individuals or family members of individuals who have been diagnosed with SMA.

    Protocol Summary

    This is a registry of individuals affected by Spinal Muscular Atrophy (SMA) and/or family members of individuals affected by SMA. The purpose of the registry is to allow researchers studying the biological basis of SMA and potential therapies in SMA access to individuals interested in participating in research and/or experimental therapies. The International SMA Patient Registry is supported by CureSMA.

    Trial Locations

    Location
    Status
    Location
    Indiana University School of Medicine
    Indianapolis, Indiana, United States, 46202
    Status
    N/A

    Contact Cure SMA

    User Information

    If you have general questions regarding clinical trials or would like to be added to the Cure SMA mailing list to receive communications regarding future registries, studies, or clinical trials in SMA, please fill out the form below. Fields marked with an asterisk (*) are mandatory.

    • Disability Advocate who does not have SMA
    • I am a healthcare provider
    • I am a researcher
    • I have no direct connection to SMA
    • I have SMA
    • I lost a child to SMA
    • My child has SMA
    • Someone close to me has/had SMA
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